Recent medical advances and new drug therapies for cystic fibrosis (CF) have improved long-term outlook and quality of life. Children born today with CF can live healthy and full lives.
UVA Health Children's is one of the 130 programs in the nation accredited by the Cystic Fibrosis Foundation to provide specialized care. At our Cystic Fibrosis Center, you'll find expertise that gives your child the best chance to flourish and thrive.
Treating Cystic Fibrosis in Children
We help your child both manage CF symptoms and maintain overall wellness. With the latest treatments and holistic support, we offer:
- Cystic Fibrosis diagnostic services
- Regular visits and screenings
- Nutritional guidance and support
- Respiratory therapy expertise and education
- Medication Management
- Inpatient care when needed
- Financial coordination and help with resources
- Emotional support and counseling
- Bridge to adult CF care
- Access to CF clinical trials
- Preparation and recovery through the lung transplant process
Why Nutrition Matters with Cystic Fibrosis
Nutrition is a crucial piece of the puzzle for disease management. Promoting better lung function means giving your body the resources it needs.
People with CF have higher nutritional needs. Getting the right mix of key vitamins is also important. Our pediatric dietitians will work with you to develop and meet nutrition goals.
Respiratory Therapists to Work with Your Child
With CF, maintaining good lung function is essential for long-term health. Our respiratory therapists can teach your child how to keep their airways clear. They will also work with your child on how to manage inhaled medications for their day-to-day lives.
Some patients need respiratory equipment to manage CF. This might include:
- Air compressors
- Supplemental oxygen
Respiratory therapists can help you learn how to use and care for this equipment.
From Child to Adult: Care That Lasts
Cystic fibrosis is a lifelong condition. Part of our responsibility is preparing your child to manage their illness as an adult. In 2021, UVA Health Children's developed a formal transition program.
Starting at an early age, we'll help your child understand their condition. We'll help them with problem-solving and understanding what barriers they may face to getting care. We'll also help them build partnerships in their care. Our adult Cystic Fibrosis Program will provide the expertise your child needs to have the best quality of life and help them meet their goals.
Participation in CF Research
UVA Health is an approved site for the national CF Therapeutics Development Network. We've participated in studies that have contributed to new drug and treatment regimens. We've also gained an improved understanding of the underlying mechanisms of CF.
Our care providers and clinical research team want to give our patients access to the latest advances.
Find out if your child could participate in any of the current clinical trials for pediatric cystic fibrosis.