Support Groups & Resources for Pediatric Cancer
Childhood cancer is a struggle that can make families feel isolated. But you’re not alone. Many other families have been exactly where you are right now. And many have found comfort and hope in community.
These are some of the support communities that our patients and their families have found helpful. There are groups specifically for caregivers, for patients, and even for siblings.
Local Groups for Support
ASK Families Group – Charlottesville
Provide support, ask questions, and share ideas with other families who are in Charlottesville. This group is open to caregivers and families, but also to children and patients, so please choose your language accordingly.
https://www.facebook.com/groups/askcharlottesvillefamilies
Stupid Cancer – Mid-Atlantic
For young adults and teenagers (and their families) the tone of “Stupid Cancer” might be a perfect fit. This non-profit’s mission is simply “to make cancer suck less.” This regional group offers opportunities to ask questions and connect, but also learn about social events occurring in your time zone.
https://www.facebook.com/groups/scmidatlantic/
DC Candlelighters
The Childhood Cancer Organization calls their support groups candlelighters, because they share light and warmth to other families navigating childhood cancer alone. The DC Candlelighters is one of 40 affiliate groups.
On their website, you can find numerous events in the Northern Virginia and DC area.
Support for Siblings
Super Siblings: Alex’s Lemonade Stand
SuperSibs is about empowering the siblings of children with cancer. Through their comfort and Care mailing program they’ll send your child age-appropriate mail about coping skills and encouragement. Learn more and enroll.
When Your Brother or Sister Has Cancer: A Guide for Teens
This PDF published by the National Cancer Institute helps teenagers with the ins and outs of having a sibling with cancer. From learning about cancer and finding ways to help to deciding to become a stem cell donor, this book covers many of the concerns siblings face.
It also includes quotes from other teenagers, spaces for journaling and reflection, and facts to help anchor your teen’s emotions in reality.
Support Groups for Parents
Momcology
Momcology was founded by mothers and offers resources for parents. Don’t let the name fool you, they also offer a dadcology hub with events for dads of children with cancer as well.
Cancer Hope Network
Trained peer mentors can help you by providing support and being a good ear when you need one. By removing your isolation, peer mentors can help you navigate being a caregiver. Once you’re in a better place, you can pay it forward by considering being a mentor as well.
Children with Cancer: A Guide for Parents
This PDF, published by the National Cancer Institute, balances dense but important information with action-oriented steps for parents to help navigate every stage of the cancer journey.
In addition to giving you the resources to be a strong advocate for your child’s medical needs, the guide also offers different ways to support your child.
Caring for the Caregiver
While not specific to parents, this guide on the experience of becoming a caregiver offers a lot for parents of pediatric cancer patients. From understanding your feelings to finding the words to share your journey with your family and friends.
Support Groups for the Family
Childhood Cancer Hub
Find support options for during treatment (Hope Portal) and survivorship (Better Together). This website offers a more comprehensive list of supports, and can be filtered by who needs the help, what the diagnosis is, and where your family is located.